As the previous update states, (you can read here) we will not be flying our kites this year due to social distancing, but, I can assure you we will continue the fight to find a cure. Join us in our fight for Dystonia by flying your own kite this spring! The requirements are easy & fun!
  1. Take a picture of you flying your kite (ANY kite!)
  2. Post the picture to your Social Media site, using the hashtag #GoFlyAKiteDystonia by Sunday, May 31st, 2020. You can also email your photo to: 
  3. Include other friends, family members, & kids for more kite-flying fun!
We will be featuring your kite-flying photos on our Website, as well as Facebook for all to see. Spreading awareness is key to finding a cure. We remain united even though we need to be apart. Now, let’s spread the message, #GoFlyAKiteDystonia!
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